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NF Clinic Network Application Form

NF Clinic Network Application Form 2026

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The document is an application form for the Neurofibromatosis Clinic Network (NFCN) detailing the Children's National Medical Center Neurofibromatosis Clinic. It outlines the clinic's history, structure, multidisciplinary team, patient care practices, clinical trials, and research activities related to neurofibromatosis types 1 and 2. The clinic has been operational since 1982 and emphasizes a collaborative approach involving genetics, neurology, ophthalmology, and neuro-oncology to provide comprehensive care for both pediatric and adult patients.

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Click ‘Get Form’ to open the NF Clinic Network Application Form in our editor.
Begin by filling out the 'Clinic Name' and 'Affiliated Hospital' sections. Ensure that you provide accurate information as this is crucial for your application.
In the 'About Your NF Clinic' section, select the appropriate options regarding your clinic's status (Freestanding, Hospital based, etc.) and provide a brief description of how your clinic operates.
Complete the 'Clinic Director' section by detailing the experience of your clinic directors and their roles. This information highlights the expertise available at your clinic.
Review all entries for accuracy before submitting. Use our platform’s tools to save or share your completed form easily.

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Got questions?

We have answers to the most popular questions from our customers. If you can't find an answer to your question, please contact us.

What is an NF clinic?

Established by the Childrens Tumor Foundation in 2007, the NF Clinic Network was created to standardize and elevate the quality of clinical care for people with neurofibromatosis and schwannomatosis, while also integrating research into everyday care.

At what age is NF diagnosed?

A person can get NF1 in one of two ways. Half of the people who have a mutation in NF1 inherited it from one of their parents. The other half have a new or de novo mutation, which happens at conception or soon after. They are the first in their family to develop the mutation.

Can anyone get neurofibromatosis?

Not all people with NF1 inherit the disease. It can also develop spontaneously. Most people with NF1 have recognizable symptoms often affecting the skin, eyes and nervous system, commonly before age 10. NF1 affects males and females equally, and shows no preference for race or ethnicity.

Can anyone get an NF?

Anyone can be born with NF, and it affects all genders, races, and ethnicities equally. Neurofibromatosis type 1 (NF1) occurs in approximately 1 in every 2,500 births. NF2-related schwannomatosis (NF2-SWN) occurs in approximately 1 in 25,000 births. SWN (excluding NF2-SWN) occurs in approximatley 1 in 70,000 births.

How do you get an NF?

About half of people with NF inherit the condition from one of their parents. The other half develops NF due to a spontaneous (also called sporadic) change in the gene. Each child who inherits the NF1 genetic variant will have symptoms of the condition.

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