NOMINATE YOUR NF HERO 2025

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  1. Click ‘Get Form’ to open it in the editor.
  2. Begin by entering your name in the designated field. This information is essential for identifying you as the nominator.
  3. Next, provide your email address and phone number. This allows for easy communication regarding your nomination.
  4. Fill in your address to ensure that all correspondence can be directed accurately.
  5. In the section labeled 'NF Hero’s name', enter the full name of the individual you are nominating.
  6. Indicate the age of your NF Hero in the corresponding field.
  7. Select the type of NF your hero has from the provided options to give context to their journey.
  8. Specify your relationship to the NF Hero in the 'NF Hero is my' section, such as friend, family member, etc.
  9. Finally, share why you believe this individual deserves recognition as an NF Hero in the provided text box.

Start using our platform today to easily nominate your NF Hero and share their inspiring story!

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Shine a Light on NF is a grassroots initiative that brings NF awareness into the community by lighting up homes, buildings, bridges and monuments in blue and green throughout the month of May (NF Awareness Month) or on May 17th (World NF Awareness Day).
Many of the symptoms are there from birth or start during early childhood, but some do not appear until later. Symptoms of NF1 can include: light brown patches of skin (caf-au-lait spots) these may be harder to see on brown and black skin. freckles in your armpits or around the tops of your legs.
Mental health Feuerstein was diagnosed with OCD (obsessive-compulsive disorder) after the Perception tour in 2018. Following the tour, he revealed that he was struggling with his mental health and admitted himself into therapy, where he received the diagnosis.
If there are no complications, the life expectancy of people with NF is almost normal in most cases. Neurofibromatosis (NF) is a genetic neurological disorder that causes tumors to form on the nerve tissue.
Shine a Light NF Walk is the signature fundraising event of the Childrens Tumor Foundation. Our goal is to spread awareness of neurofibromatosis and schwannomatosis genetic conditions that collectively affect more than 4 million people worldwide and raise critical funds to advance research and treatments.
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