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We therefore recommend 20 as the cut-off for the total score when using the DSQIID for screening for dementia among adults with Downs syndrome.
If the screening test shows that the chance of the baby having Downs syndrome, Edwards syndrome or Pataus syndrome is higher than 1 in 150 that is, anywhere between 1 in 2 and 1 in 150 this is called a higher-chance result. Fewer than 1 in 20 results will be higher chance.
It is recommended that this instrument be used on an annual or as indicated basis with adults with Down syndrome beginning with age 40, and with other at-risk persons with intellectual or developmental disabilities when suspected of experiencing cognitive change.
The KEY DIFFERENCE between dementia and I/DD is the loss of a persons typical level of functioning, or baseline. While some characteristics of dementia and I/DD may look the same side by side, its the loss in an individuals baseline abilities that can point to dementia.
DEMENTIA SCREENING QUSTIONNAIRE FOR INDIVIDUALS WITH INTELLECTUAL DISABILITIES (DSQIID)
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Myth 1: People with Downs syndrome rarely live beyond middle age. In 1983, life expectancy for people with Downs syndrome was around 25 years. Now many people live beyond the age of 60. A consequence of this is that more people are now living to an age where they are likely to develop dementia.

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