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Research Registry and Core Tissue Bank - National Institutes of

Research Registry and Core Tissue Bank - National Institutes of 2025

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The document is a consent form for participation in a clinical research study titled 'Natural History Study of the Clinical and Molecular Manifestations of Smith-Magenis Syndrome' conducted by the National Human Genome Research Institute. It outlines the voluntary nature of participation, the purpose of the study which includes creating a research registry and tissue bank for individuals with Smith-Magenis syndrome (SMS), and details about data collection, potential risks, confidentiality measures, and participant rights. The study aims to enhance understanding and treatment of SMS through genetic research.

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