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Background: A patient registry is an organized system that uses observational research methods to collect data for the scientific assessment of patient outcomes. Patient registries are an important tool for clinical research, but currently there is no central database designed specifically to list patient registries.
Alzheimers Prevention Registry. Autoimmune Registry. Autoimmune Research Network (ARNet) Breast Cancer Surveillance Consortium. Cancer Genetics Network. CASCADE FH Registry. CCHS Now Registry. Cerebral Palsy Research Network MyCP.
Types of Registries Professional Reported Registries. Such registries include data that is collected by doctors. Patient Reported Registries. In such a registry, patients are asked to provide information. Combination Registries. Information is provided by both doctors and patients.
The basic registration information is generally the patients name and date of birth, and these two identifiers are generally adequate to begin a record or determine whether the patient has been in the hospital before.
The purpose is to evaluate and improve outcomes for a patient population defined by a particular condition, disease, or exposure. Specifically, registries track information about the health status of patients and the care they receive.
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Patient registration is a process in which the name, identity, age, race, and other important personal information are recorded in a database of a particular medical institution (Warnick Molino, 2019).
Registration is a process by which a patients name and identity are enrolled into the records of the hospital. This is required in order to provide services of the hospital to the patient and to keep a track of various services that are availed by each patient.
Patient registries have been defined as an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves a predetermined scientific, clinical, or policy purpose

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