Protection of C nic Information Policy 2025

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Yes, the research activity that you describe is deemed to be issued a Certificate of Confidentiality (CoC), i.e., your research is covered by a CoC. All NIH-funded research activities in which the investigator collects or uses covered information is deemed to be issued a Certificate of Confidentiality.
Certificates of Confidentiality protect subjects from compelled disclosure of identifying information but do not prevent the voluntary disclosure of identifying characteristics of research subjects.
Certificates of Confidentiality (Certificate or CoC) protect the privacy of research participants by prohibiting disclosure of identifiable, sensitive research information to anyone not connected to the research except when the participant consents or in a few other specific situations.
A Certificate of Confidentiality is not without its limitations. If a participant volunteers information beyond the scope of the study, that information could be subpoenaed. A researcher can breach confidentiality if the researcher suspects child abuse or if the participant is threatening violence against others.
The primary purpose of a Certificate of Confidentiality is to: Protect identifiable research information from compelled disclosure. Certificates of Confidentiality protect sensitive information provided by research subjects from civil, criminal, or administrative subpoena.
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All of Us data are protected by Certificates of Confidentiality. This means: Researchers with identifiable, sensitive information about All of Us participants cannot disclose it to people not involved in their research.
Use the Online Certificate of Confidentiality System to request a Certificate of Confidentiality (CoC), issued by NIH. First, determine your eligibility by answering questions. Then, if the answers indicate eligibility, enter information about your research and your institution to complete the request.

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