Use of phi in activities preparatory to research - hipaa - University of 2025

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The preparatory to research provision also allows a researcher to identify prospective research participants for purposes of seeking their authorization to use or disclose protected health information for a research study (e.g., by screening of electronic medical records).
The Privacy Rule permits the use or disclosure of PHI without patient authorization for several purposes or situations: To an individual (unless required for access or accounting of disclosures). For treatment, payment, and healthcare operations. With an opportunity to agree or object.
Preparatory research (or simply prep research) often includes digging deeper into the clients perspective of what the research problem is, their context, perceptions, internal conflicts, or interplays that may emerge during the project, and so on.
The key provisions of the privacy rule include: Limiting the use and disclosure of PHI without patient consent: Covered entities must obtain explicit consent from patients before using or disclosing their PHI for purposes other than treatment, payment, and healthcare operations.
HIPAA allows both use and disclosure of PHI for research purposes, but such uses and disclosures have to follow HIPAA guidance and have to be part of a research plan that is reviewed and approved by an Institutional Review Board (IRB).
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For both healthcare and for research, HIPAA requires that Protected Health Information be communicated on a need to know and minimum necessary basis. Simply put, individually identifiable information should be made available only to persons whose job requires access to that information.

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