Eye on Aniridia Staff 2025

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The document 'Eye on Aniridia' is a publication by the Aniridia Foundation International, focusing on the genetic eye condition aniridia, which leads to malformation of the eyes and can result in low vision or blindness. It highlights upcoming events such as the 2009 Medical Conference at Hilton Indian Lakes Resort, discusses the importance of monitoring glaucoma in aniridia patients, shares personal stories from affected individuals and families, and provides updates on fundraising efforts and volunteer opportunities within the community.

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What does a person with aniridia see?

Generally, individuals with aniridia have a visual acuity measurement between 20/80 and 20/200. Some are legally blind, while others have vision good enough to drive a car. Most read without using Braille, especially in todays technically advanced environment of e-Readers and smart devices.

What percent of people have aniridia?

Aniridia is not very common. In the general population, aniridia occurs in 1 per 50,000-100,000 people and the number of people affected is different in different parts of the world.

Can a person with aniridia see?

Aniridia and these associated conditions affect everyone differently. So, while some people with aniridia have quite a lot of sight loss, others may have only mild blurred vision.

How rare is it to have no iris?

How common is aniridia? Aniridia affects around one in every 75,000 babies born each year worldwide. Its more common in children whose biological parents also have aniridia. Around two-thirds of babies born with aniridia have a parent who also has it.

Is aniridia a rare disease?

Aniridia is a rare condition characterized by abnormal development of the iris of the eye. The iris is the circular, colored part in the middle of the eyeball.

What is the WAGR syndrome eye?

Most people with WAGR syndrome have aniridia, an absence of the colored part of the eye (the iris). This can reduce the sharpness of a persons vision (visual acuity) and increase sensitivity to light (photophobia). Aniridia is typically the first noticeable sign of WAGR syndrome.

How many people have aniridia eyes?

This is a very rare disorder, occurring in one of 60,000-90,000 live births. Aniridia is inherited as a dominant gene, and therefore each child born to a parent with the condition will have a 50% chance of having the gene.

Eye on Aniridia Staff 2025

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