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Used blood products in the last year Yes other No Unknown MORTALITY INFORMATION 7. Date of death 10. Cause of death Primary Cause Contributing Cause 8. Information source s Check all that apply Death certificate 11. Please categorize the primary cause of death Patient s physician Hemophilia-related Patient s family Check one HIV-related Liver Disease-related dd Suicide 9. Was an autopsy performed 12. Did the patient have signs or symptoms of neurologic disease in the 6 months prior to death ...

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What is community counts understanding hemophilia and other bleeding disorders through public health surveillance?

Community Counts is a public health surveillance program that gathers and shares information about common health issues, medical complications, and causes of death that affect people with bleeding disorders cared for in U.S. Hemophilia Treatment Centers (HTCs).

What is the screening for bleeding disorder?

Five studies are important to the diagnosis of bleeding disorders: bleeding time (BT) (Simplate), platelet count, activated partial thromboplastin time (aPTT), prothrombin time (PT), and thrombin time (TT).

What is the HTC population profile?

The HTC Population Profile (HTC PP) is a set of 12 data items collected on patients with bleeding disorders or venous thromboembolism (VTE).

What is the rare bleeding disorder registry?

The Rare Bleeding Disorders Database (RBDD) is a registry whose mission is to set up a network of treatment centers dealing with rare bleeding disorders (RBDs) with the goal of developing a comprehensive database to collect laboratory phenotype and genotype data, as well as clinical and treatment information on each

What is the registry for bleeding disorders surveillance?

The Registry for Bleeding Disorders Surveillance (the Registry) gathers more detailed information on HTC patients with bleeding disorders. People who volunteer to participate will have routine medical information collected during HTC visits. Only HTC patients with bleeding disorders can participate in the Registry.

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What is universal data collection?

One of the major challenges facing scientists who work on rare disorders, such as hemophilia, is the lack of uniform health data. To address this issue and to advance health research, CDC created a national public health surveillance project called the Universal Data Collection (UDC) system.

What are some interesting facts about hemophilia?

What is hemophilia? Hemophilia makes you bleed a lot from small injuries or even without an injury. Almost everyone with hemophilia is male. Boys inherit hemophilia from their mother. People with hemophilia cant make enough of a clotting factor (proteins that help blood to clot)

What is a factor 8 blood disorder?

People with hemophilia have low levels of either factor VIII (8) or factor IX (9). The severity of hemophilia that a person has is determined by the amount of factor in the blood. The lower the amount of the factor, the more likely it is that bleeding will occur which can lead to serious health problems.

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Get the up-to-date Female Universal Data Collection (UDC) Project Fact Sheet - 2024 now

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How to change Female Universal Data Collection (UDC) Project Fact Sheet - online

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Got questions?

What is community counts understanding hemophilia and other bleeding disorders through public health surveillance?

What is the screening for bleeding disorder?

What is the HTC population profile?

What is the rare bleeding disorder registry?

What is the registry for bleeding disorders surveillance?

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People also ask

What is universal data collection?

What are some interesting facts about hemophilia?

What is a factor 8 blood disorder?

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