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hopefully most people have gotten signed in by now so hi im erin welcome from the national fabric foundation i would like to welcome all of you to our first um meeting of our 2021 virtual meeting series which we have 21 meetings planned so the only registration link that was available so far was the meeting youre attending now but soon um probably a couple of weeks to a month in advance of each meeting youll see a new registration link so we really appreciate you all being here as of my last view there were over 100 participants tonight of which 83 are primary attendees people with uh fabry disease mostly and a few family members well thats a great success and as this becomes a wildly uh popular well even get more so we look forward to that but im your poster child for uh todays talk by dr jeffries as i recently uh four and almost four and a half almost five months ago i had our heart transplant so i was in heart failure progressive heart failure and uh ended up with a very succ