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hello and welcome everyone to todays epec exchange of good practices webinar on the topic of designing surveys my name is lenya via and i work at eurodis as a patient engagement senior manager here you can see the agenda for today we have a short five-minute introduction after that our first presentation a theoretical introduction to the topic of designing surveys um we then have a 10-minute questions and answer session and then our second presentation co-designing surveys for rare diseases the year every connect journey after that we have a longer q a session of about 25 minutes and then a short wrap up im very happy that we have these four speakers here today all four have a worth of knowledge and many years of experience on the topic of designing surveys jesse dube is our first speaker she will give us the introduction on designing surveys and she works as edgar rodis as a rare barometer research executive so she works for euronass survey program ilaria galetti is represents the