Hide Text into the Clinical Trial Agreement

Aug 6th, 2022
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How to Hide Text into the Clinical Trial Agreement

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um Im excited today to kick off the fall clinical trials toolkit series um our first one is the office of sponsored programs clinical trial agreement review and negotiation um today we have Rachel humberson she is the interim assistant director um from research office and office of sponsored programs and we also have um Julie even though I practiced it Julie Im going to mess it up Anna okay is that right yeah okay she is a negotiator with research with the research office and office of sponsored programs um before I read their um their bios and a fun fact about them again we are offering continuing education to WVU employees so if um you would like CES please indicate that and please put your name um an email address in the chat so for attendance purposes um Im trying to think if theres anything else oh if you have a question during this um feel free to put it in the chat well be watching it and um I will stop Rachel and Julie and let them know what your question is and then also

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Clinical trials may be unethical because participants in the clinical trials assume equipoise i.e. that the chance of finding a benefit or a harm are equal and written signed consents are required.
Confidentiality in clinical research in the US is covered by the Privacy Rule that are a set of regulations provided by the department of health and human services (HSS) as a response to a congressional mandate in the Health Insurance Portability and Accountability Act of 1996 (HIPAA).
This includes the following: Withholding treatment to meet budgetary or insurance policy concerns. Upcoding to secure patient treatment from an insurer. Covering up a mistake. Taking money from medical device manufacturers or pharmaceutical companies. Failing to report an impaired colleague.
The general problem with the ethics of clinical trials stems from the fact that those who stand to gain from the trial results are not the same that bear the risk and burden of trial participation.
Respecting their right to change their mind, to decide that the research does not match their interests, and to withdraw without penalty. Informing them of new information that might emerge in the course of research, which might change their assessment of the risks and benefits of participating.
Following this guideline, a CSR should contain narratives for deaths, serious adverse events, discontinuations from study drug and other adverse events of interest. A narrative can be defined as a summary or synopsis of the event that has occurred to a subject participating in the clinical study.
Written Authorization A participant should also sign an informed consent document that signals that they know the details of the trials methodology, timeline, risks, etc. Only PHI is protected. It includes health history, health records, lab results, etc.
It is generally agreed that placebo is unethical when its use is likely to result in irreversible harm, death, or other serious morbidity.

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