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The speaker first noticed symptoms in December 2013, experiencing difficulty gripping with their right hand. Initially misdiagnosed with chilblains, they eventually saw a neurologist and were diagnosed with a neurological condition in 2017. Initially in denial, they eventually came to terms with the diagnosis and adjusted slowly. The sudden shift in their future plans was difficult to cope with, but through research and self-discovery, they found a way to move forward and manage their condition.