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we dont pick a disease it just happens to you i saw the neurologist and he said prepare for the worst they kept saying im so sorry [Music] i knew that one day my voice will go its really important to be heard and not to be forgotten about is the person who cant speak [Music] when he told me he told me on the phone instantly you know i got loads of flash flashes from what the future is going to look like because my dad is such an independent man i think im from that generation of difficult life and carry on yeah i mean i tend to write down what im feeling im not my condition i remember it like it was yesterday i came out sat in my car cried a massive bit of me died that day and that bit will never come back thats gone that died with diagnosis [Music] youre incredibly vulnerable with the voice like this in terms of expressing yourself its like thats it my lifes over i had plans i had plans but i still have plans okay when i first had the diagnosis everybody said thank your v