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foreign [Music] foreign [Music] thats where our two other children is taking some responsibility in taking care of the twins we know from the latest paper in 2021 that 60 of individual Superior syndrome will develop seizures and they tend to develop at up till the age of 18 years Jayden is turning 18 next year its important for his parents to be aware of this risk [Music] foreign [Music] she was very tired for a few days after that a seizures itself was it just one episode that was long or many episodes how long did it go did you have to give the Rector yeah around six minutes okay and then at nine minutes uh the jerks actually went a bit more stronger that was when we called the ambulance but then by the time she docHubed Changi the seizure had stopped yeah yeah 15 minutes she was off medication for 13 years and then now she started again yeah so we know that children who have Jamar syndrome are at risk of seizures and in the patients that we had reported many of them had severe seiz