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and action i am the mother of penelope ring rose shes a 13 year old who is living her best life right now im eighth grade when she was born we didnt know that she was going to have down syndrome or that she was going to have a heart defect i held her and i fell in love with her immediately [Music] we were ignorant about you know the condition and when we finally got to connecticut childrens we were reassured by all the staff the nurses the doctors just the people helping educating us about her heart condition and down syndrome penny is followed by cardiology endocrinology ear nose and throat the gi doctors gastrointestinal doctors oh wait shes had three heart surgeries shes also had some ear tube surgeries everybody knows their stuff theyre they do an amazing job sending me back messages on my chart at 7 30 on a friday night like answering my questions its just its just the care is just tremendous they want to make sure that were okay you know as parents the penny is okay pen
