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welcome everyone i have the pleasure of introducing katie brent and jennifer pilcher today to talk with us about the obstacles families face looking for supports for their loved ones with ftd and tips and tools to be able to advocate for them katie brandt is the director of caregiver support services and public relations in the ftd unit at massachusetts general hospital katie provides leadership for research education and community events aimed at supporting the caregiver experience for families impacted by alzheimeramp;#39;s disease ftd and atypical young onset dementias as co-chair of the national alzheimeramp;#39;s project act advisory council on alzheimeramp;#39;s research care and services katie connects with experts in the field of alzheimeramp;#39;s disease and related dementias and contributes to federal policy initiatives and research priorities that promote health equity and person-centered care at every stage of dementia katie is a passionate advocate in the rare disease