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imagine youre the parent of a child with a disability perhaps a progressive condition which can get worse over time doctors will set out your options for treatment and management of the condition maybe even some surgical interventions education and social support professionals will recommend schooling mobility and care options all the experts will have a hand on the steering wheel of the decision influencing the direction you take should you as the parent also have a hand on that steering wheel or should you simply become a passenger and let the experts decide whats best for your child they are the experts after all as the parent you need to make the decision you need to give informed consent how can you as a layman parent really evaluate the options and give truly informed consent well this talk looks at that question but obviously within the time limits it wont be a detailed exposition but ill share how i dealt with this dilemma when i had a child born with a disability now befor